Glamorizing the Unconventional: Living with Harlequin Ichthyosis Understanding Harlequin Ichthyosis Living with Harlequin Ichthyosis presents unique challenges and experiences, often moving beyond conventional notions of beauty and health. This rare genetic skin disorder is characterized by very thick, scaly skin that resembles a fish’s scales, giving individuals a distinctive appearance. But instead of shying away …
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